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Eli's Team

Andrew Silverman

Andrew Silverman

Many of you have experience working with Chai Lifeline. This is a wonderful organization dedicated to helping very sick children and their families.

Many of you also know the patient who has inspired me to run this half marathon, Eli. Eli was a wonderful boy, whose life was already difficult enough before I met him over the summer of 2016. In 2005, he underwent a heart transplant, following a difficult fight with heart failure, induced by a congenital heart defect, hypoplastic left heart syndrome. Though this procedure is intended to alleviate the difficulties he had already been facing, he continued to have complication after complication. I met Eli in 2016, when he developed another complication of his heart transplant, due to the immune suppressive drugs he required to maintain a healthy heart. Namely, that disease was post-transplant lymphoproliferative disorder. This is a uniquely challenging type of cancer to treat, and Eli's care was complicated by a cancer-induced perforation of his bowel, requiring him to live the rest of his life with a colostomy bag on his abdomen. Though he had an initial good response to his therapy, his cancer proved exceedingly difficult to treat - in fact, his physician team (including me, as a pediatric oncology fellow) attempted a total of 12 different lines of therapy, including chemotherapy, radiation therapy, bone marrow transplant, and immunotherapy. Yet despite this arduous and brave fight, Eli succumbed to his illness on November 30, 2018, in the loving arms of his mother and sister.

Following his passing, through tears and incredible strength, Eli's family informed me that Chai Lifeline was the organization that helped them through all of the difficulties of Eli's treatment and his ultimate passing. While in the hospital, while at home, and while taking trips away from home, Chai Lifeline gave them incredible support. It is for this reason that the family reached out to me to run this race as an attempt to raise money for other children and other families fighting similarly painful fights.

In fact, Chai Lifeline is an organization that provides year–round emotional, social, and financial support to more than 4,500 children and their families every year. Chai Lifeline´s programs and activities change their lives forever, returning joy and hope and enabling them to live full and happy lives despite the presence of illness. Its most famous program is Camp Simcha and its sister camp, Camp Simcha Special. Every year these two camps offer 450 kids a chance to forget about illness and just be kids again. To get a better idea of what Chai Lifeline does for families, please watch the videos below. I know they will touch your heart the way they touched mine.

Training is not easy, but neither is dealing with illness. If the children of Chai Lifeline can fight each day, if they can push themselves to go through hospital stays and treatments, I can do this for them. But I can't do this without your support. I need your help to raise as much money as possible for these kids. So please, push the donate button and help me put smiles on the faces of sick children. Let's do this together! Let's make dreams come true.

On behalf of Eli and on behalf of all of the children helped by this wonderful organization, thank you for your support.

Best - Andrew

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Comments

$3,003
raised of $3,600 goal
 

Donations

$180.00
1. Chaim & Rochie Gottesfeld
You are what every doctor should strive to be.
$180.00
2. Anonymous
$180.00
3. Barbara & Steve Aronson
In Eli's honor and in support of other children who are facing similar challenges.
$100.00
4. Jovana Pavisic
$100.00
5. Yakov Herman
Eli you will always be our hero!! Your smile and sense of humor kept us going!!! Your special doctor, Dr. Silverman continues to make great things happen!!! We miss you!!!! Yanky & Miriam Herman
$100.00
6. Paul Gilly
Paul & Maria Gilly
59 donors